The following is an excerpt from a press release
The Chan Zuckerberg Initiative (CZI) announced that the Fibrolamellar Cancer Foundation (FCF) is among a select group of patient-led rare disease organizations, including rare cancer foundations, to receive the first CZI Rare As One Network grant.
Founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015, CZI is committing $13.5 million to the Rare As One Project to support and lift up the work patient communities are doing to accelerate research and drive progress in the fight against rare diseases, like fibrolamellar carcinoma (Fibrolamellar or FLC). Fibrolamellar is an aggressive, ultra-rare liver cancer affecting children and young adults, with no curative therapies and an alarmingly low five-year survival rate.